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DIYgenomics

Page history last edited by Administrator 10 years, 6 months ago

DIYgenomics - the Citizen Genomes Project

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DIYgenomics citizen science experiments

 

DIYgenomics citizen science ethics and standards

  • Citizen science analog of an IRB (institutional review board)/ethics committee for human biomedical research
    • Informed consent statement
    • Citizen science ethics representative separate from the coordinating investigators on each study (?)
  • Standards development for citizen science
    • Defined tiers of participation (e.g.; question posing forums)
      • Look up your SNPs and add them to the citizen science database
      • Add your genotyping or sequencing file to the citizen science database
      • Indicate degree of interest/willingness to participate in the phenotypic aspect of citizen science studies
      • Contribute questions, research, analysis, background literature review, results write-up, etc.
    • Particpant acknowledgement: Anonymous, Nonanonymous
    • Nomenclature
      • Coordinating Investigator
      • Citizen Science Ethics Officer

 

Personal Genome Analysis Startups

 

Open science resources

 

 

 

 

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